Prediction of stress in mothers of children with autism spectrum disorders

  1. Pozo Cabanillas, Pilar 1
  2. Sarriá Sánchez, Encarnación 1
  1. 1 Universidad Nacional de Educación a Distancia
    info

    Universidad Nacional de Educación a Distancia

    Madrid, España

    ROR https://ror.org/02msb5n36

Revista:
The Spanish Journal of Psychology

ISSN: 1138-7416

Año de publicación: 2014

Volumen: 17

Páginas: 1-12

Tipo: Artículo

DOI: 10.1017/SJP.2014.6 DIALNET GOOGLE SCHOLAR lock_openAcceso abierto editor

Otras publicaciones en: The Spanish Journal of Psychology

Objetivos de desarrollo sostenible

Resumen

Raising a child with autism spectrum disorders presents families with exceptional caregiving challenges. Consequently, parents, particularly mothers, evidence unusually high stress levels. Previous research has identified relevant variables that help explain maternal stress: the child�s behavior problems, social support and the sense of coherence (SOC) as a perception of problem. However, there are few longitudinal studies demonstrating how these variables correlate over time. We present a longitudinal study of 21 Spanish mothers of children with autism spectrum disorders (ASD) at two measurement time points over an interval of 4.5 years. Our aims are to examine the predictive relationships of these variables (behavior problems, social support and SOC) to stress and to analyse their changes over time. Data were collected through questionnaires. The results of the regression analysis (multiple adjusted R 2= .45, �2 = .82) highlight the predictive values of SOC (adjusted R 2 = .31) and the initial stress levels (? adjusted R 2 = .14) for stress levels 4.5-years later. Our study used t-tests to compare measurements at the two time points; results demonstrate the permanence of stress levels and behavior problems and the effects of reduced social support and increased SOC levels (t(20) = 2.48, p = .02, Cohen�s d = .63; t(20) = �4.22, p < .001, Cohen� d = .58). Implications for interventions are discussed.

Referencias bibliográficas

  • Abidin R. R. (1995). Parenting Stress Index Manual. Odessa, FL: Psychological Assesment Resources.
  • Altiere M. J. (2006). Family functioning and coping behaviors in parents of children with autism. Masteŕ s theses and Doctoral Dissertations, Paper 54. Michigan, MI: Eastern Michigan University. Retrieved from http://commons.emich.edu/theses/54
  • Antonovsky A. (1987). Unraveling the mystery of health: How people manage stress and stay well. San Francisco, CA: Jossey-Bass.
  • Antonovsky A. (1992). Can attitudes contribute to health? Advances: The Journal of Mind-Body Health, 8, 33-49.
  • Antonovsky A. (1993). The structure and properties of the sense of coherence scale. Social Science and Medicine, 36, 725-733. http://dx.doi.org/10.1016/0277-9536(93)90033-z
  • Antonovsky A., & Sagy S. (1986). The development of a sense of coherence and its impact on responses to stress situations. Journal of Social Psychology, 126, 213-225.
  • Baker B. L., Blacher J., Crnic K. A., & Edelbrock C. E. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delay American Journal on Mental Retardation 107 433-4 44 http://dx.doi.org/10.1352/0895-801720021070433:BPAPSI2.0.CO;2
  • Baker J. K., Smith L. E., Greenberg J. S., Seltzer M. M., & Taylor J. L. (2011). Change in maternal criticism and behavior problems in adolescents and adults with autism across a 7-year period. Journal of Abnormal Psychology, 120, 465-475. http://dx.doi.org/10.1037/a0021900
  • Baker-Ericzén M. J., Brookman-Frazee L., & Stahmer A. (2005) Stress level and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30, 194-204. http://dx.doi.org/10.2511/rpsd.30.4.194
  • Bayat M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51, 702-714. http://dx.doi.org/10.1111/j.1365-2788.2007.00960.x
  • Belchic J. K. (199 6). Stress, social support and sense of parenting competence: A comparison of mothers and fathers of children with autism, Down syndrome and normal development across the family life cycle. Dissertation Abstracts International: Section A: T he Humanities and Social Sciences, 57, 2-A, 574.
  • Ben-zur H., Duvdevany I., & Lury L. (2005). Associations of social support and hardiness with mental health among mothers of adult children with intellectual d isability. Journal of Intellectual Disability Research, 49, 54-62. http://dx.doi.org/10.1111/j.1365-2788.2005.00662.x
  • Boss P. G. (1999). Ambiguous loss. Cambridge, MA: Harvard University Press.
  • Boyd B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208-215. http://dx.doi.org/10.1177/108835 76020170040301
  • Bristol M. (1979). Maternal coping with autistic children: The effects of child characteristics and interpersonal support. (Unpublished doctoral dissertation). University of Chapel Hill, North Carolina, NC.
  • Bristol M. (1984). Family resources and successful adaptation to autistic children. In E. Schopler & G. Mesibov (Eds.), The effects of autism on the family (pp. 289-319). New York, NY: Plenum Press.
  • Bristol M., & Schopler E. (1983). Stress and coping in families of autistic adolescents. In E. Schopler & G. B. Mesibov (Eds.), Autism in adolescents and adults (pp. 251-276). New York, NY: Plenum Press.
  • Bromley J., Hare D, J., Davison K., & Emerson E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism, 8, 409-423. http://dx.doi.org/10.1177/1362361304047224
  • Brookman-Frazee L., & Koegel R. L. (2004). Using parent/clinician partnerships in parent education programs for children with autism. Journal of Positive Behavior Interven tions, 6, 195-213. http://dx.doi.org/10.1177/10983007040060040201
  • Bryson S. (1996). Brief report: Epidemiology of autism. Journal of Autism and Developmental Disorders, 26, 165-167. http://dx.doi.org/10.1007/BF02172005
  • Cohen J. (1992). A power primer. Psychological Bulletin, 112, 155-159. http://dx.doi.org/10.1037/0033-2909.112.1.155
  • Cohen O., & Dekel R. (2000). Sense of coherence, ways of coping, and well-being of married and divorced mothers. Contemporary Family Therapy: An International Journal, 22, 467-486. http://dx.doi.org/10.1023/A:1007853002549
  • Cuxart F. (1 995). Estrés y psicopatología en padres de niños autistas [Stress and psychopathology in parents of autistic child]. (Unpublished doctoral dissertation) Universitat Aut ónoma de Barcelona, Barcelona, Spain.
  • Dale E., Jahoda A., & Knott F. (2006). Mothers' attribution following their child's diagnosis of autism spectrum disorders: Exploring links with maternal level of stress, depression and expectation about their child's future. Autism, 10, 463-469. http://dx.doi.org/10.1177/1362361306066600
  • Díaz-Herrero A., Brito de la Nuez A. G., López Pina J. A., Pérez-López J., & Martínez-Fuentes M. T. (2010). Estructura factorial y consistencia interna de la versión española Del Parenting Stress Index-Short Form [Factor structure and internal consistency of the Spanish version of the Parenting Stress Index-Short Form]. Psicothema, 4, 1033-1038.
  • Díaz-Herrero A., López-Pina J. A., Pérez-López J., Brito de la Nuez A. G., & Martínez-Fuentes M. T. (2011). Validity of the parenting stress index-short form in a sample of Spanish fathers. The Spanish Journal of Psychology, 14, 990-997. http://dx.doi.org/10.5209/rev-SJOP.2011.v14.n2.44
  • Dunst C. J., Trivette C. M., & Cross A. H. (1986). Mediating influences of social support: Personal, family, and child outcomes. American Journal of Mental Deficiency, 90, 403-417.
  • Dyson L. L. (1997). Fathers and mothers of school age children with developmental disabilities: Parental stress, family functioning and social support. American Journal on Mental Retardation, 102, 267-279. http://dx.doi.org/10.1352/0895-8017(1997)1022.0.CO;2
  • Einfeld S. L.,Tonge B. J.,Rees V. W. 2001 Longitudinal course of behavioral and emotional problems in Williams syndrome American Journal on Mental Retardation 106 73-81 http://dx.doi.org/10.1352/0895-801720011060073:LCOBAE2.0.CO;2
  • Ericksson M., & Lindtröm B. (2006). Antonovsky's sense of coherence scale and the relations with health: A systematic review. Journal of Epidemiology and Community Health, 60, 376-381. http://dx.doi.org/10.1136/jech.2005.041616
  • Faul F., Erdfelder E., Buchner A., & Lang A. G. (2009). Statistical power analyses using GPower 3.1: Tests for correlation and regression analyses. Behavior Research Methods, 41, 1149-1160. http://dx.doi.org/10.3758/BRM. 41.4.1149
  • Fecteau S., Mottron L., Berthiaume C., & Burack J. A. (2003). Developmental changes of autistic symptoms. Autism, 7, 255-268. http://dx.doi.org/10.1177/136236130 3007003003
  • Gerstein E. D., Crnic K. A., Blacher J., & Baker B. L. (2009). Resilience and the course of daily parenting stress in families of young children with intellectual disabilities. Journal of Intellectua l Disability Research, 53, 981-997. http://dx.doi.org/10.1111/j.1365-2788.2009.01220.x
  • Gill M. J., & Harris S. L. (1991). Hardiness and social support as predictors of psychological discomfort in mothers of children with autism. Journal of Autism and Developmental Disorders, 21, 407-416. http://dx.doi.org/10.1007/BF02206867
  • Gray D. E. (2002). Ten years on: A longitudinal study of families of children with autism.Journal and Intellectual and Developmental Disability, 27, 215-222. http://dx.doi.org/10.1080/1366825021000008639
  • Gray D. E. (2003).Gender and coping: The parents of children with high functioning autism. Social Science & Medicine, 56, 631-642. http://dx.doi.org/10.1016/S0277-9536(02)00059-X
  • Gray D. E. (2006). Coping over time: The parents of children with autism. Journal of Intellectual Disability Research, 50, 970-976. http://dx.doi.org/10.1111/j.1365-2788. 2006.00933.x
  • Gray D. E., & Holden W. J. (1992). Psycho-social well-being among the parents of children with autism. Austr alia and New Zealand Journal of Developmental Disabilities, 18, 83-93. http://dx.doi.org/10.1080/07263869200034841
  • Hastings R. P. (2003). Child behavior problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research, 47, 231-237. http://dx.doi.org/10.1046/j.1365-2788.2003.00485.x
  • Hastings R. P., & Brown T. (2002). Behavior problems of autistic children, parental self-efficacy and mental health. American Journal on Mental Retardation, 107, 222-232. http://dx.doi.org/10.1352/0895-8017(2002)1072.0.CO;2
  • Hastings R.P., & Johnson E. (2001). Stress in UK families conducting intensive home-based behavior intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31, 327-336. http://dx.doi.org/10.1023/A:1010799320795
  • Herring S., Gray K., Taffe J., Tonge B., Sweeney D., & Einfeld S. (2006). Behavior and emotional problems in toddlers with pervasive developmental disorders and developmenta l delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50, 374-382. http://dx.doi.org/10.1111/j.1365-2788.2006.00904.x
  • King G. A., Zwaigenbaum L., King S., Baxter D., Rosenbaum P., & Bates A. (2006). A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome. Child: Care, Health and Development, 32, 353-369. http://dx.doi.org/10.1111/j.1365-2214.2006.00571.x
  • Konstantareas M. M., & Homatidis S. (1989). Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology and Psychiatry, 30, 459-470. http://dx.doi.org/10.1111/j.1469-7610.1989. tb00259.x
  • Konstantareas M., & Papageorgiou V. (2006). Effect of temperament, symptom severity and level of functioning of maternal stress in Greek children and youth with ASD. Autism, 10, 593-607. http://dx.doi.org/10.1177/1362361306068511
  • Lazarus R., & Folkman S. (1984). Stress, appraisal and coping. New York, NY: Springer.
  • Lecavalier L., Leone S., & Wiltz J. (2006). The impact of behavior problems on caregiver stress in young peopl e with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172-183. http://dx.doi.org/10.1111/j.1365-2788.2005.00732.x
  • Lounds J., Seltzer M., Greenberg J., & Shattuck P. (2007). Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation, 112, 401-417. http://dx.doi.org/10.1352/0895-8017(2007)112%5B401: T ACIAA%5D2.0.CO;2
  • Mak W., Ho A., & Law R. (2007). Sense of coherence, parenting attitudes and stress in mothers of children with autism in Hong Kong. Journal of Applied Research in Intellectual Disabilities, 20, 157-167. http://dx.doi.org/10.1111/j.1468-3148.2006.00315.x
  • Matson J. L.,Mahan S.,Hess J. A.,Fodstad J. C.,Neil D. 2010 Progression of challenging behaviors in children and adolescents with aut ism spectrum disorders as measured by the Autism Spectrum Disorders-Problem Behaviors for Children (ASD-PBC). Research in Autism Spectrum Disorders 4 400-404 http://dx.doi.org/10.1016/j.rasd.2009.10.010
  • McCubbin M. A., & McCubbin H. I. (1993). Families coping with illness: The Resiliency Model of Family Stress and Adaptation. In C. Danielson, B. Hamel-Bissel, & P. Winstead-Fry (Eds.), Families, health and illness: Perspectives on coping and intervention. St. Louis, MO: Mosby.
  • McGovern C., & Sigman M. (2005). Continuity and change from early childhood to adolescence in autism. Journal of Child Psychology and Psychiatry, 46, 401-408.http://dx.doi.org/10.1111/j.1469-7610.2004.00361.x
  • Meadan H., Halle J. W., & Ebata A. T. (2010). Families with children who have autism spectrum disorders: Stress and support. Exceptional children, 77(1), 7-36.
  • Oelofsen N., & Richardson P. (2006). Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. Journal of Intellectual and Developmental Disability, 31(1), 1-12. http://dx.doi.org/10.1080/13668250500349367
  • Olsson M. B., & Hwang C. P. (2002). Sense of coherence in parents of children with different developmental disabilities. Journal of Intellectual Disability Research, 46, 548-559. http://dx.doi.org/10.1046/j.1365-2788. 2002.00414.x
  • Pallant J. F., & Lae L. (2002). Sense of coherence, well-being, coping and personality factors: Further evaluation of th e sense of coherence scale. Personality and Individual Differences, 33, 39-48. http://dx.doi.org/10.1016/S0191-8869(01)00134-9
  • Pisula E. (2007). A comparative study of stress profiles in mothers of children with autism and those of children with Down's syndrome. Journal of Applied Research in Intellectual Disabilities, 20, 274-278. http://dx.doi.org/10.1111/j.1468-3148.2006.00342.x
  • Pisula E. (2011). Parentin g stress in mothers and fathers of children with autism spectrum disorders. In M. R. Mohammadi (Ed.), A comprehensive book on autism spectrum disorders (pp. 87-106). Rijeka, Croatia: InTech Open Access. Retrieved from: http://www.intechopen .com/books/a-comprehensive-book-on-Autism-spectrum-disorders/parenting-stress-in-mothers-And-fathers-of-childrenwith-Autism-spectrum-disorders
  • Pozo P. (2010). Adaptación psicológica en madres y padres de personas con trastornos Del espectro autista: Un estudio multidimensional [Psychological adaptation in mothers and fathers of children with autism spectrum disorders: A multidimensional study]. (Published doctoral dissertat ion). UNED: Universidad Nacional de Educación a Distancia. Madrid, Spain. DOI: 10.5772/18705.
  • Pozo P., Sarria E., & Brioso A. (2011). Psychological adaptation in parents of children with autism spectrum disorders. In M. R. Mohammadi (Ed.), A comprehensive book on autism spectrum disorders (pp. 107-130). Rijeka, Croatia: InTech Open Access.
  • Pozo P., Sarriá E., & Méndez L. (2006). Estrés en madres de personas con trastornos Del espec tro autista [Stress in mothers of people with autism spectrum disorder]. Psicothema, 18, 342-347.
  • Rojahn J., Matson J. L., Lott D., Svensen A., & Smalls Y. (2001). The behavior problems inventor y: An instrument for the assessment of self-injury, stereotyped behavior, and aggression/destruction in individuals with developmental disabilities. Journal of Autism and Developmental Disorders, 31, 577-588. http://dx.doi.org/10.1023/A:1013299028321
  • Sagy S., Antonovsky A., & Adler I. (1990). Explaining life satisfaction in later life: The sense of coherence model and activity theory. Behavior, Health and Aging, 1, 11-25.
  • Saloviita T., Itaelinna M., & Leinonen E. (2003). Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: A double ABCX Model. Journal of Intellectual Disability Research, 47, 300-312. http://dx.doi.org/10.1046/j.1365-2788.2003.00492.x
  • Sanders J. L., & Morgan S. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implicatio ns for intervention. Child and Family Behavior Therapy, 19, 15-32. http://dx.doi.org/10.1300/J019v19n04-02
  • Scorgie K., & Sobsey D. (2000). Transformational outcomes associated with parenting children who have disabilities. Mental Retardation, 38, 195-206. http://dx.doi.org/10.1352/0047-6765(2000)0382.0.CO;2
  • Sharpley C. F., & Bitsika V. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism. Journal of Intellectual and Developmental Disability, 22, 19-28. http://dx.doi.org/10.1080/13668259700033261
  • Shattuck P. T., Seltzer M. M., Greenberg J. S., Orsmond G. I., Bolt D., Kring S., Lounds J., & Lord C. (2007). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 37, 1735-1747. http://dx.doi.org/10.1007/s10803-006-0307-7
  • Shu B. (2009). Quality of life of family caregivers of children with autism: A mother's perspective. Autism, 13, 81-91. http://dx.doi.org/10.1177/1362361307098517
  • Sigman M., & Capps L. (1997). Children with autism: A developmental perspective. Cambridge, MA: Harvard University Press.
  • Smith L.,Hong A.,Seltzer M.,Greenberg J.,Almeida D.,Bishop S. 2010 Daily experiences among mothers of adolescents and adults with ASD Journal of Autism and Developmental Disorders 40 167-178 http://dx.doi.org/10.1007/s10803-009-0844-y
  • Tomanik S., Harris G. E., & Hawkins J. (2004). The relationship between behaviors exhibited by children with autism and maternal stress. Journal of Intellectual an d Developmental Disability, 29, 16-26. http://dx.doi.org/10.1080/13668250410001662892
  • Tonge B., Brereton A., Kiomall M., Mackinnon A., King N., & Rinehart N. (2006). Effects on parental mental health of an education and skills training program for parents of young children with autism: A randomized controlled trial. Journal of the American Academy of Child and Adolescent Psychiatry, 45, 561-569. http://dx.doi.org/10.1097/01.chi.0000205701.48324.26
  • Twoy R., Connolly P. M., & Novak J. M. (2007). Coping strategies used by parents of children with autism. Journal of the American Academy of Nurse Practitioners, 19, 251-260. http://dx.doi.org/10.1111/j.1745-7599.2007.00222.x
  • Weiss M. J. (2002). Hardines s and social support as predictors of stress in mothers of typical children, children with autism and children with mental retardation. Autism, 6, 115-130. http://dx.doi.org/10.1177/1362361302006001009
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