El proceso del estrés y el afrontamiento en cuidadores informales de personas con diagnóstico del espectro de la esquizofreniaUn estudio longitudinal

  1. Belvy Mora-Castañeda
  2. María Márquez-González
  3. Alberto Fernández-Liria
  4. José Ángel Martínez Huertas
  5. Isabel Cabrera
  6. Ricardo Olmos
  7. Daniel O'Connell
Journal:
Psicología conductual = behavioral psychology: Revista internacional de psicología clínica y de la salud

ISSN: 1132-9483

Year of publication: 2023

Volume: 31

Issue: 1

Pages: 149-163

Type: Article

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More publications in: Psicología conductual = behavioral psychology: Revista internacional de psicología clínica y de la salud

Abstract

The goal of this study was to analyze the role of stress factors and coping strategies in explaining the burden and depression of family caregivers of people diagnosed with a schizophrenia spectrum disorder through a longitudinal design. An evaluation was made of thirty patients with a diagnosis on the spectrum of schizophrenia and thirty informal caregivers. Participants were assessed at three successive moments: baseline, after 5 months, and after 10 months. A decrease in caregivers´ levels of subjective burden across time was found. At longitudinal level, most of the caregivers’ coping strategies showed a relevant relationship with subjective burden and depression at some assessment time. In addition, subjective burden and depression showed a higher relationship with the patient´s negative symptomatology. At longitudinal level, avoidant and resignation showed a relevant relationship with subjective burden and depression. The changes in the evaluation of the demands that the disorder placed on the caregivers and in their coping strategies suggest the development of a process of adaptation to the disorder by the caregiver.

Bibliographic References

  • Andreasen, N.C. (1983). The Scale for the Assessment of Negative Symptoms (SANS). University of Iowa.
  • Andreasen, N.C. (1984). The Scale for the Assessment of Positive Symptoms (SAPS). University of Iowa.
  • Chadda, R. K., Singh, T. B. y Ganguly, K. K. (2007). Caregiver burden and coping. Social Psychiatry and Psychiatric Epidemiology, 42(11), 923-930. doi: 10.1007/s00127-007- 0242-8
  • Chan, S. W. C. (2011). Global perspective of burden of family caregivers for persons with schizophrenia. Archives of Psychiatric Nursing, 25(5), 339-349. doi: 10.1016/j.apnu.2011.03.008
  • Dyck, D. G., Short, R. y Vitaliano, P. P. (1999). Predictors of burden and infectious illness in schizophrenia caregivers. Psychosomatic Medicine, 61(4), 411-419. doi: 10.1097/00006842-199907000-00001
  • Ghosh, S. y Greenberg, J. (2009). Aging fathers of adult children with schizophrenia: the toll of caregiving on their mental and physical health. Psychiatric Services, 60(7), 982-984. doi: 10.1176/ps.2009.60.7.982
  • Grandón, P., Jenaro, C. y Lemos, S. (2008). Primary caregivers of schizophrenia outpatients: burden and predictor variables. Psychiatry Research, 158(3), 335-343. doi: 10.1016/j.psychres.2006.12.013
  • Hanzawa, S., Bae, J. K., Tanaka, H., Bae, Y. J., Tanaka, G., Inadomi, H., Nakane, Y. y Ohta, Y. (2010). Caregiver burden and coping strategies for patients with schizophrenia: Comparison between Japan and Korea. Psychiatry and Clinical Neurosciences, 64(4), 377-386. doi: 10.1111/j.1440-1819.2010.02104.x
  • Heilbronner, U., Samara, M., Leucht, S., Falkai, P. y Schulze, T. G. (2016). The longitudinal course of schizophrenia across the lifespan: clinical, cognitive, and neurobiological aspects. Harvard Review of Psychiatry, 24(2), 118. doi: 10.1097/HRP.0000000000000092
  • Janca, A., Kastrup, M., Katschnig, H., López-Ibor, J. J., Mezzich, J. E. y Sartorius, N. (1996). The World Health Organization Short Disability Assessment Schedule (WHO DAS-S): a tool for the assessment of difficulties in selected areas of functioning of patients with mental disorders. Social Psychiatry and Psychiatric Epidemiology, 31(6), 349-354. doi: 10.1007/BF00783424
  • Karp, D. A. y Tanarugsachock, V. (2000). Mental illness, caregiving, and emotion management. Qualitative Health Research, 10, 6-25. doi: 10.1177/104973200129118219
  • Kohout, F. J., Berkman, L. F., Evans, D. A. y Cornoni-Huntley, J. (1993). Two shorter forms of the CES-D depression symptoms index. Journal of Aging and Health, 5(2), 179-193. doi: 10.1177/089826439300500202
  • Lazarus, R. y Folkman, S. (1986). Estrés y procesos cognitivos. Martínez Roca. (Orig. 1984). Magliano, L., Guarneri, M., Marasco, C., Tosini, P., Morosini, P. L. y Maj, M. (1996). A new questionnaire assessing coping strategies in relatives of patients with schizophrenia: development and factor analysis. Acta Psychiatrica Scandinavica, 94(4), 224-228. doi: 10.1111/j.1600-0447.1996.tb09853.x
  • Magliano, L., Fadden, G., Economou, M., Held, T., Xavier, M., Guarneri, M., Malangone, C., Marasco, C. y Maj, M. (2000). Family burden and coping strategies in schizophrenia: 1- year follow-up data from the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology, 35(3), 109-115. doi.org/10.1007/s001270050192
  • Martín, M., Salvadó, I., Nadal, S., Miji, L., Rico, J. y Lanz, P. (1996) Adaptación para nuestro medio de la Escala de sobrecarga del cuidador (Caregiver Burden Interview) de Zarit. Revista Multidisciplinar de Gerontología, 6(4), 338-346.
  • Möller-Leimkühler, A. M. (2006). Multivariate prediction of relatives' stress outcome one year after first hospitalization of schizophrenic and depressed patients. European Archives of Psychiatry and Clinical Neuroscience, 256, 122-130. doi: 10.1007/s00406-005-0619-1
  • Möller-Leimkühler, A. M. y Wiesheu, A. (2012). Caregiver burden in chronic mental illness: the role of patient and caregiver characteristics. European Archives of Psychiatry and Clinical Neuroscience, 262(2), 157-166. doi: 10.1007/s00406-011-0215-5
  • Mora-Castañeda, B., Márquez-González, M., Fernández-Liria, A., de la Espriella, R., Torres, N. y Arenas, A. (2018). Variables demográficas y clínicas relacionadas con la carga y el afrontamiento de los cuidadores de personas diagnosticadas de esquizofrenia. Revista Colombiana de Psiquiatría, 47(1), 13-20. doi: 10.1016/j.rcp.2016.10.005
  • Mora-Castañeda, B., Fernández-Liria, A., Pedroso-Chaparro, M. y Márquez-González, M. (2020). Carga, depresión y familismo en cuidadores informales colombianos de pacientes con esquizofrenia y pacientes con demencia. Behavioral Psychology/Psicología Conductual, 28(3), 517-531.
  • Organización Mundial de la Salud (2000). CIE-10. Trastornos mentales y del comportamiento: versión multiaxial para adultos. Meditor DL. (Orig. 1996).
  • Parabiaghi, A., Lasalvia, A., Bonetto, C., Cristofalo, D., Marrella, G., Tansella, M. y Ruggeri, M. (2007). Predictors of changes in caregiving burden in people with schizophrenia: a 3‐year follow‐up study in a community mental health service. Acta Psychiatrica Scandinavica, 116(437), 66-76. doi: 110.1111/j.1600-0447.2007.01094.x
  • Pratima, B. M. y Jena, S. (2011). Caregiver burden in severe mental illness. Delhi Psychiatry Journal, 14(2), 211-219.
  • Roick, C., Heider, D., Toumi, M. y Angermeyer, M. C. (2006). The impact of caregivers’ characteristics, patients’ conditions and regional differences on family burden in schizophrenia: a longitudinal analysis. Acta Psychiatrica Scandinavica, 114(5), 363-374. doi: 110.1111/j.1600-0447.2006.00797.x
  • Rose, L., Mallinson, R. K. y Walton-Moss, B. (2002). A grounded theory of families responding to mental illness. Western Journal of Nursing Research, 24(5), 516-536. doi: 10.1177/019394590202400505
  • Savill, M., Banks, C., Khanom, H. y Priebe, S. (2015). Do negative symptoms of schizophrenia change over time? A meta-analysis of longitudinal data. Psychological Medicine, 45, 1613-1627. doi: 10.1017/S0033291714002712
  • Thunyadee, C., Sitthimongkol, Y., Sangon, S., Chai‐Aroon, T. y Hegadoren, K. M. (2015). Predictors of depressive symptoms and physical health in caregivers of individuals with schizophrenia. Nursing & Health Sciences, 17(4), 412-419. doi: 10.1111/nhs.12205
  • Vázquez, C. (1989a). Traducción española de la Escala para la evaluación de síntomas positivos (SAPS). Documento no publicado, Facultad de Psicología, Universidad Complutense de Madrid, España.
  • Vázquez, C. (1989b) Traducción española de la Escala para la evaluación de síntomas negativos (SANS). Documento no publicado, Facultad de Psicología Universidad Complutense de Madrid, España.
  • World Medical Association (2013). World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects. Journal of American Medical Association, 310(20), 2191-2194. doi: 10.1001/jama.2013.281053
  • Zarit, S., Reever, K. y Bach-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feelings and burden. Gerontologist, 20, 649-655. doi: 10.1093/geront/20.6.649
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